• • Children have complex cardiac defects and
• • are concerned their child may have developmental delays or disabilities

This workbook can be printed (32 pages) and should be used in conjunction with your child’s medical team. It has been formatted to be printed single-sided and used with a three ring binder. Produced by The Malley & Henry Fund, Oklahoma

Download workbook PDF.

One in 100

After a series of surgeries did little to extend his life, Henry underwent a heart transplant at age five. Now ten, Henry is thriving. But in this same decade, Henry’s mom, Erin, found there were few resources that dis-cussed how such a critical diagnosis impacts a family — their dreams, faith, relationships, finances and ability to persevere.

Henry: A Hypoplastic, Congenitally Defective, Transplanted Tale shares this family’s story as they witnessed their young-est child undergo dozens of cardio-thoracic procedures, years of uncertainty and, ultimately, a miracle through organ donation. Written by Erin Taylor, this memoir moves from the ultrasound diagnosis that changed this family’s life to finding a “new” normal as Henry learned to live with his gifted heart.

Beyond sharing her family’s story, Erin also discusses caring for siblings, marital dynamics when a child is critically ill, fundraising, working with medical professionals and asking for and receiving the help any heart family needs. This book is an empowering and trans-formative read for any family man-aging a child’s critical health issues.

For a copy of the promotional flyer, click here.

All proceeds from this book benefit the Malley & Henry Fund, which provides outreach and mentoring to Oklahoma heart families.

As heart parents, we’ve become experts at watching our kids’ O2 saturation rates through the finger/toe testing device known as pulse oximetry.  In 2011, the Health and Human Services sector of the federal government formally adopted recommendations that every newborn in the US should be tested for a cyanotic condition by having this simple test.  This is important as one in every 100 children is born with a congenital heart defect and, of these, 25% require surgical intervention within the first months of life.